I Once Was is a poetry anthology that encapsulates the feelings of distortion of time and self that occur for people severely affected by Myalgic Encephalomyelitis.Becoming chronically ill is an identity crisis; you lose the ability to do many or all of the things that defined you.M.E. is a complex multi-systemic neuroimmune disease that, in 25% of the cases, leaves the patient bedbound due to insufficient energy production within the cells. With no known cure and very limited treatments available, millions are suffering in silence in their homes without adequate help. This anthology aims to spreadawareness for this underfunded disease, and all profits from it will go towards Open Medicine Foundation.“These poems-these prayers-written by just a few of the victims of myalgic encephalomyelitis come to us from along the edges of life and death. Entrusted to our care are not just the powerful words on the page but also the silences between the words, between the lines, and in the margins. In my many years of studying poetry, rarely have I ever been so overwhelmed by the outcry of the effable longing for life, for understanding, and for someone simply to listen. Because these poets had the courage to somehow pen these lines, we must find the courage to read them, to ponder them, with our heads bowed in reverence for what surpasses utterance.”- David Patterson, Distinguished Professor of Literature and History, The University of Texas at Dallas.
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