A mother spends years fearing the blindness she can imagine for her son, only to discover that the life ahead of both of them is far bigger than anything she could see coming.When Lisa Pleasants learns that her young son, Brendon, has X-linked juvenile retinoschisis (XLRS), a rare inherited retinal disease that can cause vision loss and blindness, she does what comes naturally to her. She starts making a plan. She learns everything she can, asks questions, prepares for what might come, and tries to make the best decisions she can for his future.But raising a child does not always follow the plan. As Brendon grows, Lisa keeps looking ahead, trying to prepare him for a future neither of them can fully predict. What will his life look like? What will he be able to do? How much should a diagnosis shape the choices they make now? And while she is so focused on the person Brendon is becoming, she does not yet realize how much she is changing too.The Life I Couldn't See Yet is a mother-and-son memoir about raising a child with a rare disease, living with uncertainty, making plans, changing them when life requires it, and discovering how little any diagnosis can tell us about the people we will become.
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